Talk. Listen. Repeat.

Some people like a challenge. It makes them work harder- try to prove something to themselves or others. I guess I fall into that category most of the time, but recently it's been hard for me to get through the D stuff with a smile on my face and my usual unwavering fighting spirit. The numbers make me angry. The cost worries me. I have lost sleep over the minute details of diabetes too many nights to count.

It's no wonder that the needs of the one person in the center of all this- Noah - the most important person, in fact, get lost in the shuffle. My mind is constantly on numbers, strips, ratios, research, money...
Yes, all that is important and won't go away, but I realized recently that paying so much attention to those details has taken my focus away from helping Noah with the challenges he faces every day. I'm so used to being a cheerleader- encouraging Noah to go with the flow and, doing the whole, "we're not afraid of dumb old type 1 !" thing , that I fail to see that he might be struggling in his own way.

It's time to stop, keep quiet and really listen to Noah without jumping up all full of piss and vinegar wanting to conquer his fears. I might be surprised to find he doesn't want a cheerleader...just a mom.

Today's My Birthday

Guess what I'll be wishing for when I blow out the candles...

Words make a difference.

Noah was lucky to receive a TON of mail from us and the rest of our family while he was at camp. He was eager to share it with us, and so as we helped him unpack I paused to read each one. A cute card in particular (from a very close family member) caught my eye and I read the short message of encouragement once...twice...a third time. I couldn't believe what I was reading, as my eyes repeatedly ran across the scrawl. Amid the uplifting message, one phrase had my maternal instinct rising up in a fireball of fury.

Quoting from card: "It must be nice to know you're not the only one with this problem."

Problem. Problem. Really?

Not having enough toll money is a problem. Being stuck on the elliptical machine next to overly sweaty guy is a problem. Lindsay Lohan's appeal and fame is a problem...

This very close family member has been consistently lacking in any desire to learn more about Type 1 from the start, (no matter how many times we explain to her that Noah is on no dietary restrictions, she always plays Food Cop with us) so I shouldn't be all that surprised or expect anything more than ignorance on her part, but this message was written to Noah from someone he's supposed to trust. He's 11. He has Type 1 diabetes, and will continue to have Type 1 Diabetes always. He knows this. He doesn't need negativity and to be told what he's got is a problem.

Happy Camper

Noah busting a move at Dance Night

On Friday, I hopped in the car with Jon and my mom to fetch Noah from his 2 week stint at Camp Joslin. During his time away, we received just one letter written on his third day, stating that he didn't think camp was for him, and that he was very homesick. Oh boy. I tried not to overreact upon reading that, but every day of camp that went by, I anticipated a phone call from Joslin, and was releived at the end of the day when no such call came.
It didn't help that we missed him like crazy, too!

When we arrived at camp, we wandered from the dining hall to the cabin, looking for Noah. He wasn't sitting there looking all forlorn, waiting with his luggage, like I had imagined. We had to have him paged over the loudspeaker, and as he rounded the corner of the main office I could see the sheer happiness on his face and I knew the two weeks had become a turning point for him and his life as a kid with type 1.

There were hugs, we met a couple of his new friends, and heard a ton of stories
- he even lifted his shirt to show us the new site for his infusion set - something I could never get him to do at home. Through it all, I noticed a new confidence in Noah that had not been there before. He loved camp, and has already started talking about next summer.

Now that we're home and the normalcy has returned to our routine, that happy confidence is still abundant in Noah. So much so, that when it came time to do his site change, he surprised me by taking the reigns and doing it all himself. Drawing up the insulin, tapping out the bubbles, loading the pump, and doing the insertion like a pro.

I'll never be able to put into words the gratitude I feel towards the amazing doctors, nurses, staff and councilors at Camp Joslin. Just like Noah, I can't wait till next summer.

No Rain

Noah is now a camper. Diabetes camp, to be specific. Being his first time, we had no idea what to expect, but it's been the talk at the dinner table here at our house for months now. Wondering what the cabins will be like, and where all the other kids will be from? Will the food be good? What about the weather? Oh, the weather. The darn rain that has been plaguing us here in New England for the better part of a month straight put all the other worries to shame. Well, all the crossing of fingers must have paid off, because Sunday when we drove down to the camp, it was a gloriously sunny, warm, and DRY day.

No Rain.

We ambled up to the office where we could see counselors and kids milling around...some with pumps and tubing precariously hanging out in the breeze...some not. I looked at Noah, and saw his smile of understanding and recognition. Even as we went through the check in process, and he got to know his cabin mates, you could the bonds of familiarity forming.

After saying good-bye about 100 times, and taking the long drive home, my husband and I sat in our too quiet house wondering if Noah was doing ok. We recapped the day, and talked about our observations. My husband put it perfectly when he said this to me:

"Seeing Noah today at camp, reminded me of that Blind Melon video. Remember the one with the little bee girl? She danced and got laughed at...went all over the place trying to find where she fit in. Finally she found other bees doing their dance, and she was so happy. That's kind of like Noah today at camp."

Noah has found his bees.

Everybody's doing it.

And since I have nothing of great importance to write about lately (I've been in a funky, blue state) here we go with the iPod random shuffle list thing. I did 30 just to be different, and with music, more is better. :)

1. Nights in White Satin- Moody Blues (haunting and pretty at the same time)
2. I believe in Love- Dixie Chicks ( I do!)
3. Some Days are Better Than Others -U2 (some days you can't stand the sight of a puppy)
4. Break on Through- The Doors
5. Cry Me a River- Justin Timberlake (he's my guilty pleasure!)
6. Please forgive Me- David Gray
7. Drive in Drive out- Dave Matthews Band (one of my favorite live bands ever)
8. Runaway- Bon Jovi (now, where did I put my Aqua Net?)
9. White Trash Wedding, Dixie Chicks (this is a great song to request at weddings)
10. Bathwater - No Doubt
11. Got To Give It Up- Marvin Gaye (so grooovy)
12. Freedom '90- George Michael (remember the video with all the models and no George Michael? That was a big deal back in the day)
13. Hallelujah- Rufus Wainwright (this version is my favorite. I have such a soft spot for Rufus.)
14. Red Rain- Peter Gabriel
15. Other Side of the World- K.T. Tunstall
16. Dancing Days- Stone Temple Pilots (from the Led Zepplin tribute album.)
17. Finale (from Harry Potter POA soundtrack) John Williams
18. I Am the Walrus- the Beatles (sitting in an English Garden waiting for the sun...)
19. Let's go Crazy- Prince (this song makes me dance around my kitchen like a nut)
20. Walk on the Ocean- Toad the Wet Sprocket.
21. Vertigo- U2
22. Ice Cream- Sarah Mclachlan
23. Music - Madonna
24. Turn it on Again- Genesis
25. Gossip Folks- Missy Elliot (I don't like alot of the newer rap, but Missy is one exception)
26. I'm Shipping Up To Boston- Dropkick Murphys
27. What's Up- 4 Non Blondes
28. Everlong- Foo Fighters (my favorite FF song. I love the video with Dave Grohl's big hand.)
29. Dancin in the Light- Entrain (fun East-Coast band!)
30. I want It All- Queen (I cannot stress this enough- Freddie's voice is amazing. There is no match for it.)

That's it! I don't know what it says about me, other than the fact my musical taste is completely all over the place.

Banging our heads against the wall.

Yesterday, Noah's teacher (Mr. S.) called to let us know that Noah's been "increasingly difficult" in class. Not getting along with the other kids...throwing full-on raging hissy fits over relatively minor happenings, and being so nasty to one of his friends, that the teacher had to separate them. Mr. S. explained to Noah that he's pushing his friends away by acting like this. Noah's defense is that he's being bullied, and he gets so angry that he loses his cool and lashes out. I told Mr. S. that Noah has told me about the bullying in the past, and my advice to him was to not react like he does, because that's what is fueling the fire for these kids.

Mr. S. says he's not quite sure Noah is being truthful about all this bullying, because he said Noah overreacts and blows things up so much...like the boy who cried wolf. I agreed that Noah can and does overreact, but he does not lie, and told him of a few recent instances of the bullying. Mr. S. was not aware of these, and wondered why Noah didn't tell him about it. I said-" just because he didn't tell you, doesn't mean he's lying." He said he would investigate what I told him. Most of it, he went on to say, is the age...5th grade is tough and all that, and I understand, but what worries me most is that Mr. S. believes Noah is seriously lacking coping skills. I agree with him there. It's like he's so innocent, that he takes everything at face value. He has no "street smarts". He can't recognize when some one's being sarcastic in a mean way, (as kids are known to do ) and can't seem to understand when someone doesn't like him, or doesn't want to be his friend.

I let Mr.S. know that we have talked this through with Noah till we've been blue in the face, and that we feel at such a loss for what to do next. Counseling? More talk? what? I can only give him so much parental advice, and at this point, it seems like it's falling on deaf ears.

My husband and I spent a good amount of time last night going over what we could have done wrong. I feel like we broke our kid. It seems like before diabetes came into the picture, he was doing fine coping with life, he had school buddies and was generally a happy camper. We realized his diagnosis didn't change him...it changed us. We went from letting Noah be this free and easy little boy, to hovering over every move he made. I tried to make everything easy for him, because my thinking was that he had so much to adapt and adjust to already being a person with diabetes. I overcompensated and tried to make the days go smooth for him. I babied him too much. I didn't let him live and learn, like a kid is supposed to. My dad says a kid has to eat a little dirt sometimes. He's right.

So, after some mulling it over, I think some kind of counseling is the way to go. Now begins a search for someone who hopefully has some knowledge of Type 1...not that it's essential, but it may help.